February is Turner Syndrome Awareness Month.....as most of you know I am not a huge advocate or one who stumps for causes but I need to tell Kelsey's story to as many people as I can as it has made a huge difference in her life to have answers to questions that have plagued her since birth. If you go back to the beginning of this blog you can read about how I found out that Kelsey had Turners and the journey that she and I have had to get us here a few years later,.....we are still struggling....I will never say life is easy ....I do not think it ever will be for her or me but we will always make the best of what we have and let me tell you she lives it to the fullest every day....All it took was one question of why is she so small and it took off....
It has been awhile since I updated all of you so here it is....she is not doing great in the height and weight department ....so endo gave me an ultimatum .....gain and grow or change something....
From October to March Kelsey plays 2 sports....gymnastics and hockey...both very active and strenuous sports and this is what we have figured out are causing her weight loss as she is on the ice 2 days a week and in the gym 6 hrs a week. So we have cut back her conditioning at the gym and no extra skating as she can't burn the extra calories. I am giving her all the extra snacks and meals I can fit in ....but she is also going through another period of lack of hunger (thank you ADHD meds) but she will snack so I just keep giving her high calorie food and pray for the best....
School continues to be a struggle to....although she loves it and tries so hard she is just not keeping up with the work. Multiplication is a bit easier for her and she is getting it better than adding and subtracting but anything with reading is still a sticking point. Looking into testing again as there has to be more to the story than just ADHD.....there always is....
Last Saturday she had a hockey game and scored 3 goals in the game and stick handling and skating is second nature "she was in her zone" and was thrilled with herself and from there went to her first gymnastics meet and struggled as it showed that her memory is affected as she has to recite the routines as she does them and no matter how much she loves the sport its not "her sport" ...she took 6th place on vault .... Just last weekend we were watching the Gabby Douglas Story on TV and she turns to me and says "mom I am going to play in the Olympics....but not in gymnastics..that's Kianna's thing.....I am going to play hockey....." And you know what I think she is right....she will do whatever she puts her mind to ....she has so much heart and determination....
So this is the year I am going to let her follow her dreams...she wants to try out for travel hockey......so I am going to let her....we talked about it and it may mean coming out of the gym for awhile as travel hockey is very time consuming but she is dedicated...
So no matter what Turner's or life for that matter is throwing her way she is going to tackle it and go full force ...with me by her side.....and it's her thing.....
