Little news.....

Little news....she grew 1/4 of an inch ...but she lost weight! So back to trying to fatten her up!

So since we last met a few things have happened....school ended....uneventfully....she is going on to 3rd grade...she is struggling but as usual I am pushing for her and will always make sure that she has all the accommodations and supports that she needs. I think I am glad that this year is done. Not super impressed with her teacher...I think I just had such superstars for the first two years that when I got one that didn't shine so bright ..or go so far for her I was jaded....I guess I want everyone to go the extra mile for her and I have to remember that is not the norm and maybe this teacher was the norm...

She is training in the gym 2 days a week with the "Hotshots" pre team for gymnastics.....her second love..let me tell you this child has developed muscles on her muscles!  She is loving learning her routines. She loves her coaches and when she gets to work out with "the big girls" (the team girls ) she is in heaven!!!!  She seems to have a talent...if anything she is strong and determined but we knew that !!!! (Although she keeps asking when hockey starts!)

Her birthday was this past Tuesday...eight ...where did the time go....so I wrote a birthday post on Facebook as I do for each child on their birthday...here is Kelsey's ...

she came in feisty and determined as I guess someone had plans for her that we did not know about ...she came in to teach me what it meant to fight...for her.....with her.. and beside her...I have delighted to watch her unfold from a tiny infant who struggled to eat, grow and talk but had the... biggest eyes and an infectious smile, to a toddler with so much energy and hair I don't know what was bigger..lol...to a preschooler who pushed the limits and found her love of her sport...to a grade-schooler who despite her struggle comes out on top and loves everyone around her...she will do great things ...just you watch....
" Though she be but little, she is fierce!"-Shakespeare
So many liked and commented ..the love that this child carries amazes me.....so although we have little news ...she is continues to make progress....every little bit is big in my book!

 

 

Poptarts and Oreos are good for you...lol !!!!

Well I am not going to apologize for not posting in ages ...there has been little to post as I have been working hard on getting Kelsey to gain weight. I have been letting her have so many things that I have usually never let her have.....oreos (in her lunch everyday!) poptarts, pringles, skittles, extra helpings of dinner, extra snacks, and I found a protein bar that she can eat that she will eat! So for the past 3 month I have been stuffing her with "junk food" ..which kills me to do as she is my better eater who likes fruit as dessert and eats just a healthier diet than most kids her age. She had to have some blood work done so unless there is something funky with her thyroid she should be in the clear.

So.....drum roll please......... she gained 2 3/4 lbs ..close enough to 3 lbs to make the Dr happy and enough to kick start her growth again....a whopping INCH!!! She is now 46" tall and 52 lbs.....She may make it out of the booster seat by prom !!!!

Her health is stable for now. She had her ear tubes out in February. ENT has decided that she has grown enough that she doesn't need them. So out they came...only complication was a bleed and some vomiting from the anesthesia.  He repaired the hole in her ear, removed the tubes and cleared out all the scar tissue from all the surgeries. In early March we went in for hearing tests and ....HER HEARING IS NORMAL!!! For the first time in her life she can ignore me like a normal kid! I am never so happy to yell at her for not listening to me ....because SHE CAN!!!!

School is as usual a struggle... we added a few more things to her 504....as I finally got her OT eval results and it did not add anything that was conclusive. I asked for less problems on the paperwork and tests..more time on tests and if needed during classwork(which she already had but was not being followed for stupid reasons and causing anxiety for Kelsey) ....she is still decoding site words and struggling to read fluently but she plugs along and is proud of the accomplishments she does make and I celebrate each one.  She recently brought home a math test with 20 problems (which is against her 504 ...which is another issue recently addressed...ugh...) but was very proud that she got them all done and only got one wrong...which once I looked at it wasn't ,....the number was written backwards...but still and incorrect answer...

Kelsey just finished her first season as a Mite in hockey...she had a great season with two of the best coaches I could have asked for.  She scored quite a few goals this season and really enjoyed the season. She has really improved in her skating and stick handling. If only she would stop singing and dancing on the ice during games......

She is now on to gymnastics twice a week as a Hotshot at the gym. She is getting stronger every week....and is so muscular....one of the moms saw her in her leo the other day and commented on how "cut" she was....she really is and its just her body type....but it is funny to see her sitting next to the little girls at the gym and they are still "little" girl body types and then there is Kelsey .......


Well that is all for now...I hope that you have been caught up in what has happened in the last few months...I try to keep little updates on Facebook and save the drama for here...so I am sure that I will talk to you all soon....

And just remember......Poptarts and Oreos do good.....for Kelsey!!!!

 

It's A New Year!

Well I succeeded in missing not only the Fall but the holidays too...sorry friends..but life has gotten away from me.

We have not had a whole lot of good news so maybe that is why I been so quiet.

Kelsey's last appointment was wrought with issues....no growth...weight loss...a question of her heart having some "stress issues"...a new rash/vitaligo spots...if her meds are working ....and then there was school...

So we tackled the easiest first....the rash...her awesome dermatologist had no clue what it was ..cultured it (which included scraping her skin....poor kid..) and it was some type of fungus that had turned into a vitaligo spot so gave her some creams and poof 3 weeks later all better ...well except for the white spots on her chest!

Next feed her more...she has to gain 3 pounds in 3 months to kick start her growth again.....OK...most fattening things that the poor PA suggests I say "nope she is allergic :) " so Kelsey is eating Peanut Butter Crackers and Chocolate Soy milk before bed most nights. ...Oh and trips to 5 Guys with Grandpa!!!

This month we go to cardiology to check the stress on her heart...that was an issue that I had no clue and the endo said that it was nothing to be to concerned about...just get it checked out....if they didn't call you about it after the last echo then it was nothing to worry about......heart=worry to me .....

and school.....she is plugging along....reading her report card requires a PHd but that I have said before....I still feel like she is very far behind the rest of the 2nd graders and I will fight to keep her where she belongs...

So here  are the highlights...she skated on the P-Bruins ice right before Christmas and thought that it was "a miracle" her word exactly!!! She is getting stronger everyday she skates and is becoming quite the gymnast too...she is writing stories all the time for me and loves to read them to me!

When I have more updates I will let you all know until then ....a New Year.....looking for more pounds and more inches for her!!!!